Some of you may know that my wife Shirley had minor surgery a little over a week ago to take some lymph nodes from her pelvis for biopsy, well we got the results yesterday and they weren't good. They found that she has what they call low grade lymphoma, so the next step is to see how far along it is with more scans and maybe a bone marrow biopsy, which she is dreading, then probably treat it with chemo. Thats where we are right now, will keep everyone informed when we get more info. Please don't feel sorry for her, that is the last thing she wants, and I hope she doesn't come on here and read this or she will kick my butt, lol, I just needed to get it off my chest. Thanks for listening/reading.
12-18-2008, 06:09 PM
wow rob I had no idea, I know the how she feels about not wanting people to feel bad for you, almost makes it worse. I had 2 scares with bad biopsy's and a couple rounds of surgery, tell her to keep her chin up and even though its scary keeping positive helps more than people know
12-18-2008, 06:21 PM
Always a scary thing when they use the C word. I know the feeling. Let her know the bone marrow biopsy isn't that bad I had it done and it's not as bad as I thought it would be. She will be in our thoughts and prayers if that's ok with you.
12-18-2008, 06:21 PM
Rob, she is in our thoughts and prayers. Keep us posted.
12-18-2008, 06:39 PM
You guys will be in our prayers!
12-18-2008, 07:01 PM
Rob, you guys will be in my thoughts and prayers. And remember this, if it IS low grade lymphoma, the chances for recovery are very good. A very good friend of mine's wife had lymphoma, and it was caught early. While the treatment was No Picnic, she made 100% recovery, and as of right now, is 3 years post treatment, and still cancer free.
The treatments they have today are incredible.
12-18-2008, 08:06 PM
shes in our prayers robbie
12-18-2008, 08:33 PM
Well that really sucks.......not what your family and al of us who are your friends wanted to hear........stay strong and call if you need an ear to chew on......Brian
12-18-2008, 10:03 PM
Rob I'm sorry to hear that.. We're all here for you and she'll get better don't worry!
Let me know if you or her need anything
12-18-2008, 11:49 PM
hang in there rob.let us know how things go.
12-18-2008, 11:59 PM
Thanks everyone, as redbeard said, it is very treatable, just have to wait and see what stage she is in before they go any further. She has been thru this before and is not looking forward to doing it again, but keeping her head up knowing that shes beat it before and she will do it again.
12-19-2008, 12:02 AM
Sorry to hear that Rob, sounds like you guys have a good attitude though.
12-19-2008, 12:12 AM
Sorry to hear everything going on with your wife. The treatments are very good, and she will make a full recovery. :) Your family is in my thoughts and prayers
12-19-2008, 04:50 AM
Hang in there Rob!
12-20-2008, 01:05 AM
You are both in my thoughts.
If either of you need anything, you know how to reach me. I have lots of time on my hands right now. Happy to do anything I can...
Try to enjoy the holidays, and tell Shirley not to let it get her down. She will overcome.
12-20-2008, 05:22 AM
I'm hopeful for good results and have lots of positive thoughts and wishes coming your family's way.
When does she get the results back from the additional scans?
If there is anything that we can do, please let us know!!!
12-20-2008, 06:27 AM
everything will be fine rob =)
12-20-2008, 05:09 PM
CA, she doesn't go in for the next set of tests until the 12/31, should know more then. Again, thanks everyone for your thoughts.
12-20-2008, 05:46 PM
Sorry to hear that there was a positive for cancer - We'll be thinking about both of ya. Be positive, she'll do fine.
01-13-2009, 02:45 AM
Well, we had a busy week last week, drs. appts., CT scans, bone marrow biopsy, surgery to have a port put in her chest, echo of her heart, and a chemo class. Today was her first treatment and things didn't go to well. She had a reaction to one of the chemo drugs. They started out slow with it because it is the one you will have a reaction to, so they start it slow then bump it up a little every half hour. It would take 12 hrs to get it in her at the rate they started at. Well, a friend came over to sit and visit with her while I ran home and made sure the dogs hadn't distroyed the house, in that time Shirley had a reaction that they didn't expect, she quit breathing. They turned off the meds, flushed the lines with saline, had oxygen on her and shot her up with meds to counteract the reaction. By the time I got back everything was normal. She ended you haveing another reaction to the same drug later, but not as severe, just a bad itch, but they reacted fast and just turned the drug off. Now its going to take two days to get her meds in her, one day for the harsh drug at a slow dose and the next day will be a short one for the other two drugs. They say that the cancer causes the reaction, so the farther into the treatment the better it will be. Long day. Thats where we are now, looks like these treatments are going to be a challenge for a while.
01-13-2009, 02:50 AM
wow...that sux... glad they got it cut off and reversed(sorta) as quick as they did.... hopefully things will smooth out and go better from here on out
01-13-2009, 03:54 AM
I have heard of people having bad reactions to that stuff...hope she gets better soon...
01-13-2009, 04:13 AM
hang in there rob......yea sherri said some of that stuff is pretty bad medicine.but once they get through it,it gets better and better.your both in our thoughts.
hoping she gets well soon.
if you need anything im not that far away !!!!
01-13-2009, 06:29 AM
I have been worried about you guys for a while now, but figured you would update when you could.
I am so sorry to hear about the bad reaction. The chemo drugs can be very scary, and very frustrating.
If either of you need anything, please don't hesitate to ask. I have lots of time on my hands right now, and I have been through this ordeal before. I know how hard it is to get basic things done, like grocery shopping, laundry, etc when you are spending all of your time at various doctors offices/hospitals.
I am thinking of you both...
01-13-2009, 01:54 PM
Hang in there and keep us posted. Your in our thoughts and prayers. You two have a lot of Scion family here to call on if you need anything.
01-13-2009, 02:29 PM
Rob both you and your wife are in my prayers and thoughts as you go through this horrible ordeal, I have faith that both of you will come out of this ok. And along with everybody else, please let me know if there is anything, anything at all I can do.
01-13-2009, 04:15 PM
I am so sorry that you guys have to go through this, my thoughts and prayers are with you....
01-13-2009, 04:20 PM
So sorry to hear this Rob. If you need anything please do not hesitate to let any of us know! You are in our thoughts and prayers....both of you!
01-13-2009, 05:08 PM
:( Well she has her work cut out for her. Hope the reactions subside and she can get on with it. I met her up at Exposed she seems like the kind of person that can hack it. Hold her hand and get though it - You both can do it!
Take care of her Rob.
01-14-2009, 03:17 AM
My buddy went through the same treatments and he was sick for so long he nearly went insane he said......it was horrible,same thing....sick all day and night,could not eat,itched,tired,dizzy........but he is now about 4 years later and free and clear.......
01-20-2009, 12:00 PM
Well, got the results of the bone marrow biopsy yesterday, the cancer is in there also. Doctor said that they are going to continue with the meds that they started with. She will now be doing chemo over two days, instead of one. She is going back to work today on very light duty. They are going to find some filing for her to do or help out at the front desk rather than be back in the kitchen. Thats it for now, go see a nutritionist Thurs. to try to get some weight on her, still losing weight.
01-20-2009, 12:55 PM
Oh Robbie, I'm so so sorry you both are going through this.
01-20-2009, 03:04 PM
Wow... sorry to hear... hopefully the meds will kick in and start clearing stuff out...
02-06-2009, 05:47 PM
Just a quick update, Shirley had treatment on monday and had two more reactions to the Rituxan that they were giving her, so they aren't doing it anymore. That will shorten her treatment day, but may have to have more treatments. Right now they have her scheduled for 6, so 4 more for sure. They will probably want another bone marrow biopsy towards the end to make sure that it is gone there. Her lymph nodes have reduced in size quite a bit from the first treatment so that is good, and she went back to work on thursday, so she isn't letting it slow her down. She has cut her hair very short because it started falling out about a week ago and has a few cute hats that she is wearing now. She has gained 4 lbs. in the last 3 weeks, so that is good too.Thanks for your well wishes. I would post a pic of her that I took at the cancer center, but she would kick my butt if I did, so I won't, lol.
02-06-2009, 05:54 PM
Wow keep us updated and we will continue to keep her in our prayers.
02-06-2009, 07:13 PM
Hang in there guys.........we are all here for you.
02-26-2009, 03:15 PM
Well, another quick update. As some of you all ready know, we ended up in the ER on Sunday, Shirley has had a fever since Wed, and the doctor decided she needed to be there. Well, yesterday she had an appointment with her primary doc and he checked her out, still running a fever after a week so they decided she needed stronger antibiotics and admitted her to the hospital yesterday afternoon. Stopped in to see her on my way home from work last night, it took them forever to give her the IV with the meds in it and she is thinking that they are going to keep her for another night to get more meds in her thru the IV. She is set for another round of chemo this Monday. She was suppose to have it last Monday, but with the fever they couldn't give them to her. I'm getting ready to head over to the hospital here soon, just wanted to let everyone know what was up, more later.
I need a dog sitter, lol.
02-26-2009, 04:26 PM
Awww, Rob, I am so sorry.
Tell Shirley to stay strong. It is really rare to be able to get all chemo treatments as scheduled. Most people go through bouts of really low blood counts, or fevers. I know it feels like such a setback, but she just needs to take it one step at a time.
Hang in there...
02-26-2009, 07:46 PM
Yeah, they have been watching her blood counts all weekend and they have been really good, which means her body is fighting the pnemonia. Her blood pressure dropped really low over night and it sounds like she will be there until at least tomorrow, maybe longer. They want to get more of the antibiotics into her thru the IV before sending her home. Thank god for insurance.
05-13-2009, 04:24 PM
Wow, its been a while since the last update, I'm falling behind, lol. Shirley had her last treatment yesterday, now we wait for a few weeks and then she goes in for more scans to make sure they got it all, then we go from there, hoping for the best. Her blood count has been great thru all this, so that is good, and she has gained weight, so that is good also, and her hair is growing back already, little fuzz head. Well, I'll post up when we get the scans and results, thanks for everyones support and prayers.
05-13-2009, 05:57 PM
That is really good news. We will keep her in our prayers that all is good when she goes back in.
05-13-2009, 06:01 PM
good to hear
05-13-2009, 07:00 PM
Rob, sounds like it's going well. That is good news!
05-13-2009, 07:20 PM
I wish I had read about your dog sitter needs earlier.
I'm glad it seems to be turning up :)
05-13-2009, 08:42 PM
Glad to hear she is done and doing well. I hope she is clear and never has to deal with that again. Fingers crossed for ya both.
Hope to see you both soon -
06-06-2009, 04:50 AM
Well, just wanted to give a quick update here. Shirley had a PET scan last week and we talked to the doctor today about the results. He said that there are still active cancer cells in the lymph nodes so he is sure that its still active in the bone marrow. He wants her to see a specialist at OHSU to get a second opinion and see what he recommends. Her doctor told her that they could end up doing stem cell transplant or bone marrow transplant. Shirley is not taking this news too well, and only two days before her birthday. So, thats where we are right now, waiting for more tests to take place, and more appointments to be made.
06-06-2009, 06:59 AM
Fword.........that sucks man......guess I will pray harder..........hang in there guys........call me if you need to.........Brian
06-06-2009, 07:02 AM
Sorry to hear Robbie.. I will say more prayers for Her, and your family.
06-06-2009, 01:52 PM
Just take it one day at a time... wife and I are pulling for you two.
S & N
06-06-2009, 03:01 PM
Hang in there Robbie. She will need all the support you can give her (I know you know that) Let her know there are a lot of people out here pulling for her and she is in our prayers.
06-06-2009, 03:19 PM
hang in there you two.
still in our thoughts and prayers
06-06-2009, 03:52 PM
Robbie if there's anything at all you guys need please don't hesitate to let me know. I'm good for anything you guys may need from dog sitting and walking to helping clean house.
One day at a time.
06-06-2009, 06:20 PM
sorry to hear that dude...hang in there.
06-07-2009, 06:24 AM
booo... that sux.... thoughts with you and your wife....
07-20-2009, 08:52 PM
Update - how's she doing Robbie?
07-20-2009, 09:04 PM
Well, she had her last chemo treatment a few weeks ago and now they want to give her a rest before they do anything more. She has had her lifetime max of one of the meds they wer giving her. It scars the heart tissue, so they can't do anymore of that drug. They are talking about doing another bone marrow biopsy and PET scan in the next month or so and see how things look. They can then decide if they are going to watch it or treat it with something diff. Transplant is not out of the question, but they don't want to rush into that just yet. So, for now its one doctors appt. at a time.
07-21-2009, 01:35 AM
Well you guys hang in there stay positive. We'll keep you in our prayers. Keep us updated.
07-21-2009, 01:40 AM
She looked good at the car show, seemed real positive and appeared to be having a good time so that's all good signs
07-21-2009, 02:48 AM
Robbie let me say it again, anything I can do please let us know, Erik and I are available for anything from car washing, oil changes, grocery picking up, dog sitting, gutter cleaning, I don't care. If there is ANYTHING either of us can do to make your lives just a little easier, please, please let me know.
07-21-2009, 03:34 AM
got a 16 yr old you can take to guam with you, lol, j/k. Everything is going good here, she is feeling tired alot, but thats from the chemo and will get better with time. Yes, her hair came back good, but is now coming out a little from the last two chemos, so we will see how it looks in a month, lol. Her spirits are up, she had a blast at the car show and hopes to get more time off for other shows and gtg's this summer. Thanks alot everyone for your prayers and thoughts, it means alot to us.
12-03-2009, 10:25 PM
Wow, how time flies. Its been a year since we started this trip and its far from over. Shirley had another PET scan last week and we got the results today when we went in to the doctors office. It shows that the cancer cells are active and coming back. Lymph nodes are all swollen again, but we knew that, and she has been in alot of pain at times. The doctor told her that she needs to quit work and concentrate on getting better so we are going to look into SSI to get some help. Without that, keeping the car, truck and house will be a challenge. The cancer center is setting up an appt for her to see a doctor at OHSU again to start the stem cell transplant process. Christmas just went out the window, but I'm not worried about that, the kids will understand. I wanted to update this as I know alot of you have been wondering whats going on. And, no, I won't be making it to any of the toy drives this weekend, time to tighten the ol' belt.
12-03-2009, 10:54 PM
Sorry to hear that she isn't getting better Robbie. I do agree with the Dr. that she does need to quit working so she can get better & get over this so I'm glad you're making those moves.
Times are going to be tough I'm sure, but remember we're all here for you and if you need help please do ask. we can always come to you so that you don't have to travel so far.
The best christmas gift is you guys being a family & being together so I'm sure everyone understands....
I hope she gets better soon, it sounds like it's been a tough road, but you both have been strong the entire time and I know you can continue to do so..
12-03-2009, 11:14 PM
I know exactly how you feel and what you guys are going through. you would be amazed how much help relaxation and time with loved ones can help. the tiniest bit of extra strength and a boosted attitude can change everything. the doctors actually commented on how much better my mom did when the boys would be spending a lot of time with her. I guess love IS the best medicine
Ill keep you guys in thoughts and prayers, let me know if there is anything i can do.
12-03-2009, 11:43 PM
Sorry to hear this. Robbie let Shirley know she is in our prayers. At times like this cars and such are not so important as long as you have each other. I may not be close enough to be of any help but just know you both are in our thoughs and prayers.
Have faith that she will overcome this and you guys will be stronger for it.
i'm not a religious person, but i am allowed to have faith or even hope that things will get better for you.
hope things get better....
12-03-2009, 11:57 PM
Well I am sorry to hear that Robbie. You, Your wife and family will be in my thoughts!
12-04-2009, 01:56 AM
Is there anything we the Scion Community could do for your family......bring you some food for Xmas dinner,I could even cook it for you guys,I am a top notch chef..........
This latest news leaves me feeling sad and rather helpless and human.........
Please let me know if there is something even as simple as gettign you guys a Xmas dinner setup........I could bring the food,drive it down,and cook it......you gotta do the dishes though.....lol.........Brian
12-04-2009, 02:57 AM
^I'm in! Let us know what we can do to help! I'll do dishes :P I know this has been an on-going thing and that sucks and never a worse time than the holidays for this news too. Keep positive and again let us know it we can help!
12-04-2009, 03:47 AM
Robbie I sent you a PM.......we really really are available to help you have a xmas.......it would not be a burden on us to do.......last I checked the idea about Xmas was to give and spread some joy.......
Sounds like your family has not had much joy over the last year......even as wacked out weird my year has been with what is going on in my own family.........it is trifle compared to your year........Brian
12-08-2009, 09:06 AM
We go down to OHSU Fri. morning to see the transplant specialist, see what happens from there.
12-08-2009, 04:19 PM
Good luck Robbie, keep us posted. Tell your wife thanks as well for letting you share with us what is going on.
12-09-2009, 10:30 AM
My heart and thoughts go out to you and your family. I too am hear to help if you need anything, I will come along and help with dishes..!
12-14-2009, 02:41 AM
We as a family are always here to do what we can to help..
Shirley... get better soonest!
12-14-2009, 05:29 PM
Thanks for everyones support, we really appreciate it. We went and talked to the doctor at OHSU and he told us that he wants Shirley to do another round of chemo with a new drug that just got approved a few months ago. But first she has to get another biopsy from her lymph nodes to see how the cancer is progressing. They also want to map a donor to make sure that they are compatable. Its not a blood compatablity, its an immune system compatablity test. Shirley's brother has already said that he would be a donor if he is a match. So, at this point we are awaiting word from the hospital as to when they are going to get things started, hopefully soon. More when we find out more.
12-15-2009, 03:48 AM
Good luck Robbie & Shirley, let's hope that things get better & that she's able to find a donor. I'm sure if her brother isn't a viable candidate, i'm sure somewhere here in the community may be able to assist you so keep us all in the loop
12-15-2009, 04:47 AM
Good luck you guys. We're thinking of you.
01-12-2010, 11:03 PM
Sooooo, I'm about sick to my stomach right now. We got a call from the cancer center this morning, my insurance isn't going to cover the new chemo drug that they want to give Shirley. They consider it experimental because it is too new still. Of course, we can appeal and go through the whole process and see what happens. I've already fired off a few emails to them and the lady told me that she would forward my email to the first step of the appeal process and a lady at the cancer center took copies of my pay stubs and fired off a letter to the drug company to see if we can get some help from them. Hopefully they will cover it if the insurance company decides not to after the appeal. Shirley's last day of work is Friday as the doctor doesn't want her working, she needs her rest. So, basicly we just lost almost $25K in income, heres to hoping we can keep at least the house and car, already planning on giving the truck back if things don't turn around here real soon. Shirley is already threatening to not do the chemo if the insurance comapny doesn't cover it. If we don't get help from them to only other option is to file bankruptcy on the hospital bills after she is done with her chemo, but I would hate to do that. Stress, you gotta love it. Glad I didn't go have my blood pressure checked today, doc would've admitted me to the hospital, lol.
01-13-2010, 01:26 AM
Oh Robbie that's horrible. If there's anything you need you know exactly where to find Erik and I, we'd love to do anything ANYTHING at all to help. You and Shirley are in our thoughts and prayers.
01-13-2010, 01:39 AM
Oh man...I feel for you guys, talk about insult to injury...Hopefully they will see the light when the pull there heads out of... well you know where.
01-13-2010, 01:58 AM
Sorry Robbie.. You know I'm in town if you need anything, just shoot me a PM!
01-13-2010, 04:42 AM
That sucks Robbie and that is why I hate our health care system and our gov't sometimes.. Good people like you don't deserve this kind of treatment - they just don't get that you're already suffering 'cause of the cancer, then loosing the income.. F (followed by a lot of other letters & ending in G) insurance companies - I hate how they can sit there and watch someone suffer
Hang in there Robbie, remember there is a huge community here ready to help however we can
01-13-2010, 04:47 AM
01-13-2010, 05:11 AM
Well that is jsut wonderful,a person can lose their home,there car,there property,oh and their life because an insurance company decided they do not feel the need to do their job and do what they are paid for.......
Shirly and Robbie and family.......this is tragic......I am so sorry to hear this.........
I am at the point of having nothingmyself and yet,I will give you all I have left if it will help........this makes me cry and sad for your family......Brian
01-13-2010, 04:29 PM
Wow Robbie. I just read through all of this. I'm so sorry to hear that you guys have to go through it.
I know it's hard, but both of you try to keep your heads up and don't give up. Things will fall into place and work out for the best.
Take care, I wish the best for you both and your families.
01-13-2010, 06:57 PM
Thanks everyone for your kind words. I have already started the appeal process with the insurance company. We'll see where that takes us. Shirley has an appointment tomorrow morning for what they call a chemo class. They tell you what to expect, how long it will take, and what you can and can't do before or after each treatment. Last time it was, no sex for a week after each treatment, your radioactive and will burn your partner, ouch, lol. Again, I come and post this to vent, get it off my chest and you people give great words of encouragement and make us feel better, for that I am greatful to have such a great group of people to lean on in tough times, thanks again.
01-13-2010, 09:53 PM
Good to hear Robbie......
I get to goto the doctor tomorrow my self,I am having sever chest pain since Sunday,numb left hand,back pain,and left shoulder pain and when I cough it feels like being hit with a hammer in my heart area........
Not looking forward to this with everything I have going on in life,to have soem form of serious medical issue too is jsut a bit much.......
But I would rather see a doctor and find out waht is wrong than not wake up one morning.......
01-13-2010, 11:28 PM
LOL Sorry to hear about the sex, that was last time, hopefully this time that's not the case.. :)
01-14-2010, 12:18 AM
I would try it.......honestly....radioactive wally could be cool.......hey dude check this out it glows........lol
Sorry tried to make some humor out of it all......you can smack me later Robbie........lol.....heck sex at your age.......:bow::bow::bow:
01-14-2010, 12:33 AM
his age? he's in his prime
01-14-2010, 01:34 AM
I know Robbie is a hottie.....no homo there Robbie......but how cool would redioactive minime be.....here let me put some light on that for you......cue glowing lightsaber sound.......lol
01-14-2010, 02:00 AM
Lol Brian agreed Robbie is fo sho a hottie ;)
Robbie you have my number wink wink nudge nudge.
On a real note, keep us all posted please everyone here cares about you and Shirley
01-14-2010, 03:02 AM
Sucks to hear about the insurance company but, as everyone else has said, anything you need I would try my best to help out. Good luck in the appeal process.
01-14-2010, 07:28 PM
Just got back from the doc. appt.. GlaxcoSmithKline is currently doing studies with the drug that the insurance company turned down. The studies are on the east coast and in Texas. Since its not feasable for us to jump on a plane and fly to Texas, they have decided to comp. us the drug for Shirley's treatment and they will use her results in their studies. We start this new chemo treatment a week from Monday. It will be 3 days of out patient treatment, including a 24 hour period she will have a pump on, then off for two weeks and then another 3 day stretch. Then they will send her back to OHSU for further tests to get her ready for the stem cell transplant. We need to get her brother mapped to see if he is a match, if not they will use her own stem cell. Got alot of questions answered today. Tomorrow she goes in for a lymph node biopsy. We are feeling alot better about things right now. Things are moving fast, which is good, the sooner the better. We'll keep you all posted.
01-14-2010, 10:58 PM
good news Robbie - hopefully all that will do the trick
01-15-2010, 01:40 AM
Robbie if you need help with dog sitting, house sitting, driving things, heck I'll pick up or drop off dry cleaning or anything you guys may need PLEASE let me know Erik and I want to be able to do SOMETHING. I'd give a kidney I would!
01-15-2010, 03:55 AM
nice... good to hear...
01-15-2010, 02:07 PM
Good to hear Robbie, I hope this treatment will be effective in the fight.
01-15-2010, 11:34 PM
Cool, sounds promising!
01-28-2010, 03:40 AM
Just a quick update. Shirley has started her new chemo and things are going pretty good. She made it through the new drug with only a slight hic-up, she started to get a rash and her head stuffed up, but they were able to stop that and the rest went without a hitch, so that was a good thing. Ended up being a long day and they didn't get both drugs on board the first day, so they stetched out the treatment another day. So, she will have an appointment of some sort every day this week and Monday of next week, then 2 weeks off and do it all over again. Only doing two rounds this time then to OHSU for what I'm guessing will be some tests to get ready for stem cell transplant. Shirley's feeling a little ill. She has anti-nausea meds that help, so hopefully it won't be too bad. Thats about it for now.
Kelly(mnscion), if you read this, what car did you buy?????
01-28-2010, 03:48 AM
good to hear.......the chemo does not sound like a fun ride to have to go on.....take care guys.
01-28-2010, 05:29 PM
They have come a long way with the chemo drugs and being able to counteract the ill affects with the anti-nausea meds. I'm just glad that they were able to get the new drug on board without many problems like she had the last time around. This is looking very promising.
01-31-2010, 04:29 PM
Wow Robbie, I just read through all of this...Talk about a rollercoaster ride...Sounds alot like the ride I took with my THEN (5) year son who battled brain cancer for five years...We know all too well the affects of chemo as well as radiation treatments...He is now (15) years old and even though the tumor and craniotomy has left him with permanent damage and we will have to take care of him throughout his adult life, he is still with us and that is what is important...
You will get through this with family, friends, and prayer...Continue to be strong and my families thoughts and prayers are with yours...
02-01-2010, 03:00 PM
Thanks Tim, yeah its been a real ride. Shirley is getting hit hard with the nausea this time around. She has been really sick to her stomach. The anti-nausea meds are working, but she was not feeling to good this weekend. Have another long day today at the chemo center to get the Arzerra in her. Hopefully she won't have a reaction this time around and they can get us out at a decent time.
02-03-2010, 01:25 AM
Robbie...Shirley...I need to talk to you! Shirley left me a voice mail last week, but I am scared to call, since I don't want to interrupt any rest she may be getting!
Looks like today is a chemo day, so I will definately not call today or tomorrow.
I miss you both like crazy. It was so good to hear Shirley's voice on my phone! Victor and I would like to host a little party for you guys, but I want to make sure it's ok with you first. There is so much I want to do to help you, but I dont even know where to start. Please tell me of anything you need...
I am having surgery next week, so I will be out of commission for a bit, but I would be a good Shirley-sitter if needed!
02-03-2010, 07:00 PM
Oh, and I just bought a POS Mazda to get me around until I am settled with his insurance company. I think I have my heart set on the new RS 7 xB. Saw my first one yesterday...NUM! Hope they are still around when I am done with this mess.
Oh my GOD...it says 40 next to my name now!! ACK!! That looks too weird!
02-03-2010, 07:42 PM
LOL, mine is going to say 50 soon enough. RS 7 would be cool, I can't wait to see one in person. Oh, and you have PM.
02-03-2010, 07:54 PM
wow you guys are old ha ha ha ha ha & you shouldn't be buying Scions, weren't they more designed & targeted for the younger crowd lol
02-03-2010, 08:37 PM
Shawn, I can't write in here what Shirley said, lol, but I think its to opposite of have a nice day. Got a good laugh, thanks.
02-04-2010, 02:21 AM
Old Age and Treachery will always overcome Youthful Exuberance :P
Tell Shirley to get better, Personally I told the disease to get the F%^K out of my body NOW
Need to have some "Tude" towards it :gun:
03-07-2010, 12:40 AM
So, we made it through the 2 rounds of chemo. Had an appt. at OHSU yesterday to talk to the transplant doctor and his coordinating nurse, got informed as to what was going to happen next. She already has an appt. for another bone marrow biopsy next week and we have a class we have to attend at OHSU on the 17th of this month. Going to get another round of chemo on the 22nd, 23rd and 24th, then start neupogen injections every day to help raise her white cell count for harvesting. They have a very small window as to when to do this, so we will be basicly on call and will be getting blood work done on a daily basis to track this. After this is done, then we will begin the process of chemo for 6 days to kill her bone marrow off and then the transplant. If everything goes as they have it tentatively mapped out, she could be getting the transplant as soon as the 19th of April. I will be taking a month off work when she gets released from the hospital as I will be her caregiver and she will need 24/7 care for the first month or more. This was a load that they hit us with yesterday and we are still processing it and trying to get everything figured out. Then, when we get home I had an email from the nurse stating that she forgot to inform us that we would have to relocate to Portland so that we are within a 30 min drive to the hospital for the first 30 to 45 days after she is released. I don't know how we are going to do it, but we will figure something out. They want us close so that we won't be late for any appts. and she is going to be having them several times a week. We have a relative that lives in Portland, so we are going to use his address and just make sure we leave the house with enough time to make the drive down from home, Heck, give me a siren and a red strobe on the hood, I can be there in 30 mins, lol.
03-07-2010, 01:00 AM
dang dude...sorry to hear you guys really need a break here.
03-07-2010, 01:09 AM
dang dude...sorry to hear you guys really need a break here.
Yeah, and I'm working every available weekend until things happen. May have to take a weekend off and head north, I hear there are some people up there that want to see us,(Kelly, Victor and Keith) so we may have to pop up and see how the northern half live, lol. Party at the club. :icon_dj:
03-07-2010, 01:38 AM
Well it sounds like things are beginning to look towards the positive. Though it sounds like you still have a lot of work to go through first, but in the end if it all works then it will be worth it.
I do think you need to come up north so we can all do dinner & catch up/get your mind away from all the stress & real life stuff =)