InTheWASide
10-18-2005, 09:18 PM
**To clarify, I put CF WALK in the subject... the event is called GREAT STRIDES but I couldn't get that to fit. As GREAT STRIDES is in fact a CF WALK, I identified it as such. Please read on :)**
Hey everyone,
we have just gotten a HUGE boost from a local dealership!
Kelly Bindeward (I bet I spelled that wrong), formerly from Minnesota, now the Scion manager for Scion of Lake City, has offered to do everything she can to assist with our HUGE charity event in the upcoming year.
GREAT STRIDES is theCystic Fibrosis(CF) Foundation's largest and fastest growing event, involving more that 95 foundations chapters and branch offices Nationwide. In 2005, GREAT STRIDES brought in more than $28 million dollars for CF research and patient-care programs that are bringing us closer to a cure.
GREAT STRIDES provides targeted marketing opportunities for sponsors, while offering individuals of all ages the chance to participate in a scenic walk. The event also provides the perfect occasion for employees to gather outside the workplace with their family, friends and co-workers to make a valuable contribution to their community.
Since 1955, the mission of the CF Foundation is to assure the development of the means to control and cure cyctic fibrosis and to improve the quality of life for those with the disease. The CF Foundation tirelessly pursues its mission by supporting scientific research, which is dedicated to the discovery and development of new therapies. At the same time, it funds and accredits a network of specialized treatment centers that provide state-of-the-art care for people with CF. By applying the same principles that a "for-profit company" follows - efficiency, innovation, and a results-driven approach - the CF Foundation is making a profound difference in the lives of those with CF.
What: GREAT STRIDES
When: SUNDAY, MAY 21, 2006
Where: MURAL AMPHITHEATRE, SEATTLE CENTER
Times: REGISTRATION - 12:00PM / WALK 1:00PM / BBQ TO FOLLOW.
What role are we playing in this event?
Scikotics/Seattle has signed up as the official and EXCLUSIVE Finish Line Sponsor of Great Strides / Seattle. I think this would be a GREAT time to get at least a few people from just EVERYWHERE out here to do something that is going to accomplish SO MUCH GOOD.
CF only affects 30,000 or so people in this country, but there are connections in the Scion family... Jyl (HMFIC/Scikotics-NY) has a cousin with CF and her friend's child has it as well, and Jessi (Scikottie Hottie/Seattle) has the disease herself. The CF Foundations donations go right back into a proactive search for a cure, so you will be directly affecting the lives of these 3 I mentioned, and SO many more. In fact Jessi has told me on many occasions that if not for the CFF she'd probably have died a long time ago, the leaps and bounds they have made are JUST THAT BIG!
So here's what I'm asking...
I would be THRILLED if every Scion owner on this board were able to make it in some form... Walking teams, gather donations, etc. You have 7 months advance notice and plenty of prep-time whether you're wanting to drive or fly (if from E Washington!). It's May, so even any mountain roads taken should be a breeze. We'll be provided with a booth with TONS of giveaways for all that are participating thanks to the exceptionally generous actions of Scion of Lake City and the Scion Manager Kelly ( :bow: :clap: Thank you so very much! :clap: :bow: ) and it'll be a chance to show that Scion owners ACROSS WASHINGTON care about finding a cure for CF EVERYWHERE.
If you're not able to make it to Seattle's GREAT STRIDES, but are otherwise interested and may want to even sponsor the Great Strides in YOUR area, please visit the following site:
http://www.cff.org/great_strides/
You can get sponsor information, find a walk near you to set up a walking team to raise money, and find lots of other useful information.
I'm not sure if the rates are different in different places, but to be the Exclusive Finish line sponsor, where we get the booth, one car on the property AT the booth, professionally made signs, mention in their newsletter the official program, a thank you brunch and much more,
IS A COMMITMENT OF ONLY $1500!!!
I've told people to think of it this way.
If you have 15 people in your chapter, you are each in charge of $100. Want to donate $25 yourself? You only need to ask TEN PEOPLE for $7.50 EACH, IN SEVEN MONTHS.
THIS IS SO EASILY DOABLE AND WILL LET THOUSANDS OF FAMILIES AROUND THE COUNTRY KNOW THAT SCION OWNERS EVERYWHERE CARE ABOUT THEM! PLEASE HELP MAKE THIS HAPPEN!
If you have any questions or need more info, please contact me and I'd be happy to help you!
425-268-4342
Here's a few pics I've found from previous events...
http://toritimes.homestead.com/04Sea18.jpg
http://us.i1.weekendrush.com/us/walk/cf/skin/us.heartofamerica/0002.0105.02.gif
http://www.cysticfibrosiswa.org/greatstrides.jpg
http://www.smith-howard.com/aboutus/images/photo_cysfib.jpg
http://www.ocregister.com/newsimages/local/2004/10/4choc1.jpg
http://www.dansroom.org/images/gstrides03/corp16_files/image002.jpg
I hope to see some of you there!!!
****************************************************************************
Scikotics/Seattle is pairing with the Cystic Fibrosis Foundation (CFF) and has chosen it as the primary organization to make donations to. The CFF has been around for 50 years and is the leading organization seeking to find treatments and a cure for CF.
The donations/collections for the CFF will be held at every meet. here is how it will work:
When we get together on any kind of basis (full group meet, a couple people hangin out, etc) we will be asking for donations of ANY amount. You can donate $1, 3.91, 7, 8.14, 100.... it doesn't matter.
I would like to ask that at each meet we get people to donate the BARE MINIMUM of $0.25, but again any amount is still a better amount than $0. Each time we get to $200, we will donate it to the CFF.
Any questions, I would like it if you can contact myself, or Scikottie_Hottie. (Jessi)
jessi is my best friend, not to mention a 24 year old fellow Scikotic living with CF. You can also visit the website listed below.
Thank you!
The Cystic Fibrosis Foundation
http://www.healthcharitiesfla.org/resources/ccf.gif
The Cystic Fibrosis Foundation is a donor-supported, nonprofit organization whose mission is to find therapies--and eventually a cure--for cystic fibrosis (CF), and to improving the quality of life for those with the disease.
Cystic fibrosis (CF) is a genetic disease affecting approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections.
According to the CF Foundation's National Patient Registry, the median age of survival for a person with CF is in the mid-30s. As more advances have been made in the treatment of CF, the number of adults with CF has steadily grown. Today, nearly 40 percent of the CF population is age 18 and older. Adults, however, may experience additional health challenges including CF-related diabetes and osteoporosis. CF also can cause reproductive problems—more than 95 percent of men with CF are sterile. But, with new technologies, some are becoming fathers. Although many women with CF are able to conceive, limited lung function and other health factors may make it difficult to carry a child to term.
Please take the time to visit www.cff.org or call (800)-FIGHT-CF to learn more about the services and programs available to people with CF.
The CFF turned 50 this year. Here's a list of what they've done in that time.
http://www.cff.org/UploadedFiles/news/Files/50YearTimelineFinal.pdf
With the help of Scikotics/Seattle it's just a matter of time before CF is only talked about in history class! Let's contribute toward a cure!
Hey everyone,
we have just gotten a HUGE boost from a local dealership!
Kelly Bindeward (I bet I spelled that wrong), formerly from Minnesota, now the Scion manager for Scion of Lake City, has offered to do everything she can to assist with our HUGE charity event in the upcoming year.
GREAT STRIDES is theCystic Fibrosis(CF) Foundation's largest and fastest growing event, involving more that 95 foundations chapters and branch offices Nationwide. In 2005, GREAT STRIDES brought in more than $28 million dollars for CF research and patient-care programs that are bringing us closer to a cure.
GREAT STRIDES provides targeted marketing opportunities for sponsors, while offering individuals of all ages the chance to participate in a scenic walk. The event also provides the perfect occasion for employees to gather outside the workplace with their family, friends and co-workers to make a valuable contribution to their community.
Since 1955, the mission of the CF Foundation is to assure the development of the means to control and cure cyctic fibrosis and to improve the quality of life for those with the disease. The CF Foundation tirelessly pursues its mission by supporting scientific research, which is dedicated to the discovery and development of new therapies. At the same time, it funds and accredits a network of specialized treatment centers that provide state-of-the-art care for people with CF. By applying the same principles that a "for-profit company" follows - efficiency, innovation, and a results-driven approach - the CF Foundation is making a profound difference in the lives of those with CF.
What: GREAT STRIDES
When: SUNDAY, MAY 21, 2006
Where: MURAL AMPHITHEATRE, SEATTLE CENTER
Times: REGISTRATION - 12:00PM / WALK 1:00PM / BBQ TO FOLLOW.
What role are we playing in this event?
Scikotics/Seattle has signed up as the official and EXCLUSIVE Finish Line Sponsor of Great Strides / Seattle. I think this would be a GREAT time to get at least a few people from just EVERYWHERE out here to do something that is going to accomplish SO MUCH GOOD.
CF only affects 30,000 or so people in this country, but there are connections in the Scion family... Jyl (HMFIC/Scikotics-NY) has a cousin with CF and her friend's child has it as well, and Jessi (Scikottie Hottie/Seattle) has the disease herself. The CF Foundations donations go right back into a proactive search for a cure, so you will be directly affecting the lives of these 3 I mentioned, and SO many more. In fact Jessi has told me on many occasions that if not for the CFF she'd probably have died a long time ago, the leaps and bounds they have made are JUST THAT BIG!
So here's what I'm asking...
I would be THRILLED if every Scion owner on this board were able to make it in some form... Walking teams, gather donations, etc. You have 7 months advance notice and plenty of prep-time whether you're wanting to drive or fly (if from E Washington!). It's May, so even any mountain roads taken should be a breeze. We'll be provided with a booth with TONS of giveaways for all that are participating thanks to the exceptionally generous actions of Scion of Lake City and the Scion Manager Kelly ( :bow: :clap: Thank you so very much! :clap: :bow: ) and it'll be a chance to show that Scion owners ACROSS WASHINGTON care about finding a cure for CF EVERYWHERE.
If you're not able to make it to Seattle's GREAT STRIDES, but are otherwise interested and may want to even sponsor the Great Strides in YOUR area, please visit the following site:
http://www.cff.org/great_strides/
You can get sponsor information, find a walk near you to set up a walking team to raise money, and find lots of other useful information.
I'm not sure if the rates are different in different places, but to be the Exclusive Finish line sponsor, where we get the booth, one car on the property AT the booth, professionally made signs, mention in their newsletter the official program, a thank you brunch and much more,
IS A COMMITMENT OF ONLY $1500!!!
I've told people to think of it this way.
If you have 15 people in your chapter, you are each in charge of $100. Want to donate $25 yourself? You only need to ask TEN PEOPLE for $7.50 EACH, IN SEVEN MONTHS.
THIS IS SO EASILY DOABLE AND WILL LET THOUSANDS OF FAMILIES AROUND THE COUNTRY KNOW THAT SCION OWNERS EVERYWHERE CARE ABOUT THEM! PLEASE HELP MAKE THIS HAPPEN!
If you have any questions or need more info, please contact me and I'd be happy to help you!
425-268-4342
Here's a few pics I've found from previous events...
http://toritimes.homestead.com/04Sea18.jpg
http://us.i1.weekendrush.com/us/walk/cf/skin/us.heartofamerica/0002.0105.02.gif
http://www.cysticfibrosiswa.org/greatstrides.jpg
http://www.smith-howard.com/aboutus/images/photo_cysfib.jpg
http://www.ocregister.com/newsimages/local/2004/10/4choc1.jpg
http://www.dansroom.org/images/gstrides03/corp16_files/image002.jpg
I hope to see some of you there!!!
****************************************************************************
Scikotics/Seattle is pairing with the Cystic Fibrosis Foundation (CFF) and has chosen it as the primary organization to make donations to. The CFF has been around for 50 years and is the leading organization seeking to find treatments and a cure for CF.
The donations/collections for the CFF will be held at every meet. here is how it will work:
When we get together on any kind of basis (full group meet, a couple people hangin out, etc) we will be asking for donations of ANY amount. You can donate $1, 3.91, 7, 8.14, 100.... it doesn't matter.
I would like to ask that at each meet we get people to donate the BARE MINIMUM of $0.25, but again any amount is still a better amount than $0. Each time we get to $200, we will donate it to the CFF.
Any questions, I would like it if you can contact myself, or Scikottie_Hottie. (Jessi)
jessi is my best friend, not to mention a 24 year old fellow Scikotic living with CF. You can also visit the website listed below.
Thank you!
The Cystic Fibrosis Foundation
http://www.healthcharitiesfla.org/resources/ccf.gif
The Cystic Fibrosis Foundation is a donor-supported, nonprofit organization whose mission is to find therapies--and eventually a cure--for cystic fibrosis (CF), and to improving the quality of life for those with the disease.
Cystic fibrosis (CF) is a genetic disease affecting approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections.
According to the CF Foundation's National Patient Registry, the median age of survival for a person with CF is in the mid-30s. As more advances have been made in the treatment of CF, the number of adults with CF has steadily grown. Today, nearly 40 percent of the CF population is age 18 and older. Adults, however, may experience additional health challenges including CF-related diabetes and osteoporosis. CF also can cause reproductive problems—more than 95 percent of men with CF are sterile. But, with new technologies, some are becoming fathers. Although many women with CF are able to conceive, limited lung function and other health factors may make it difficult to carry a child to term.
Please take the time to visit www.cff.org or call (800)-FIGHT-CF to learn more about the services and programs available to people with CF.
The CFF turned 50 this year. Here's a list of what they've done in that time.
http://www.cff.org/UploadedFiles/news/Files/50YearTimelineFinal.pdf
With the help of Scikotics/Seattle it's just a matter of time before CF is only talked about in history class! Let's contribute toward a cure!